/ multiple-sclerosis

Post-appointment letter

Yesterday I received a letter from the hospital, 3.5 days since my appointment to the letter being with me - I swear they haven't been that quick before! This is a letter from Dr Pearson to my GP, I get CC'd in on it. The first thing that I noticed when I looked at it was that my EDSS has dropped from 3 to 2.5, that's surely got to be good. I have mild finger nose ataxia, which means I shake a bit going from index finger touching nose to full arm extension. I also have slight pronator drift in the right upper limb, and no I can't explain what that is. There's increased tone in both of my legs but surely that could just be because I ride bikes more than is, probably, wise. The next bit of the letter covers the new meds and possible side effects. The final part is titled Plans. My bloods returned normal which, whilst expected, is still a relief. Going to need blood tests every three months I think. There's nothing else of note other than the bit about my bladder scan. Dr Pearson says that he thinks that I require intermittent self-catheterisation. The prospect of ramming a tube down my urethra doesn't fill me with glee but, in all honesty, it'll be a massive load off my mind. The ability to go into situations without worrying about if I'm going to need the toilet or even if there is one is not something to be easily dismissed. I hadn't really realised how much of game changer a slightly broken bladder could be, until it happened. I think that this is going to be subject to what the continence team think too so I'll have to see how that develops. I'm actually kind of hopeful for the catheter, as odd as that may sound. All in, pretty positive I reckon.

Post-appointment letter
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