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Tag - multiple-sclerosis

Foot drop - An MS update

Thu 07 December 2017

Foot drop. It's not some funky 30s dance, it's a "muscular weakness or paralysis that makes it difficult to lift the front part of your foot and toes". I sat down at my PC on Friday evening and when I got up to go to bed I kicked the floor …

Letter from neurologist team

Day 206 - photo a day 2017

Tue 25 July 2017

Not much to report today but I received this letter on Saturday. Although it's only a brain scan, and I think there may be lesions in my spinal cord, it's good news! On photoing this letter I also found a second page that goes into a bit more detail, although …

Morriston Hospital

Day 135 - photo a day 2017

Mon 15 May 2017

We went down to Swansea today to go to Morriston Hospital for my yearly appointment with my neurologist. Parking was, as usual, awful. There were cars everywhere, luckily we managed to pull into a not a space really quickly. We arrived a bit early as I wanted to leave a …

Rear of Bronglais Hospital

Day 132 - photo a day 2017

Fri 12 May 2017

A visit to Bronglais. Just a routine appointment with the MS nurse, nothing exciting! The hospital is a bit less attractive from this side. I only had to wait 5-10 minutes before being seen (and I was 5 mins early anyway) which was great. We quickly realised that actually the …

Stretches written on whiteboard

Day 123 - photo a day 2017

Wed 03 May 2017

Another standard day. This evening I cleared out what used to be my office but has become a bit of a storage room. I mostly just moved stuff that belongs outside into the garage and then tidied up to leave some space and make the room a room again. My …

Front of hospital

Day 96 - photo a day

Thu 06 April 2017

Today I had an appointment with urodynamics. The appointment was at 9:40 so I rode over and got to the waiting room at 9:35. This was the first time that I've not been straight in. I had to wait less than 10 minutes and I was in. Straight …

Incontinence bed protector pad

Day 45 - photo a day

Tue 14 February 2017

This one isn't a happy fun time photo but part of the point of this was as a partial ongoing log. It's an incontinence bed protector pad thing. I've mostly got bed wetting under control but now and then it happens. It's happened twice in last week (first time this …
Vitamin D test results

Day 12 - photo a day 2017

Thu 12 January 2017

Screenshots count as photos right? Well, I think that they do. Well this one is the results of my vitamin d test. The overcomingms book says that 150+nmol/L is best for MS patients so I think I'm doing OK at 131, should be pretty easy to boost it …

Vitamin D test

Day 6 - photo a day 2017

Fri 06 January 2017

Today I received me some post! What I got was maybe a bit unusual; a vitamin d test kit. Why? I'll tell you why.

I bought the litmus paper because of a conversation I had with a colleague at my works christmas meal. We were chatting and I mentioned that …

Following up

Tue 21 June 2016

This post follows up on the last couple that I've written, a couple of weeks ago I had two follow up appointments; one with urodynamics and the other with the MS nurse.

The appointment with urodynamics was made due to me having issues with fitting the catheters so we decided …

A visit with Urodynamics

Fri 20 May 2016

On Thursday I had an appointment at the Urodynamics department in Bronglais. I actually managed to park in the hospital car park for once (yes, I drove the mile there. You try walking that far in an urban environment with a bladder that gets upset by walking!) so was already …

Post-appointment letter

Sat 16 April 2016

Yesterday I received a letter from the hospital, 3.5 days since my appointment to the letter being with me - I swear they haven't been that quick before! This is a letter from Dr Pearson to my GP, I get CC'd in on it. The first thing that I noticed …

Change of Medication

Mon 11 April 2016

Today, I had an appointment with the MS team down in Swansea Morriston hospital. I had 2 goals going into the appointment; get something to fix my bladder and change my MS medication. I got to the hospital and spent 5 - 10 minutes trying to park before just abandoning the …

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